Where can patients and Chapters find help and assistance with questions about the National ALS Registry and problems enrolling in the Registry?
Agency for Toxic Substances and Disease Registry (ATSDR)
This webform is recommended for all ALS Registry questions, concerns or complaints. Complete the information provided on the form, add your comments, and it will be submitted to the ATSDR’s National ALS Registry team. Please be sure to provide your own contact information.
Phone: The ALS Registry System Administrator may be reached by phone at 1-877-442-9719, from 9am-6pm ET.
E-mail: ALSSystemAdmin@cdc.gov
The ALS Association
Public Policy Department / Registry Questions and Assistance
Phone: 1-877-444-ALSA (2572)
Email: advocacy@alsa-national.org
ALS Association Chapters
Click here to find the contact information for your local Chapter.
Have questions about the National ALS Registry? This page was created to help Chapters answer any questions that PALS or others may have about the National ALS Registry and the ALS Registry website, including questions about enrollment.
